This has been another difficult week in the dipg community.
Eric Kelly went Home on the 28th of March and this morning he was joined by Brian Jones. There will always be a void in the homes of these boys.
A website has been added for Gunner Shultz (May 07) as well as the foundation set up in his memory.
Although Alicia Garcia (Nov 07) doesn't have a website, the picture provided by her mother makes it very clear just how young and precious each of these children are.
Samuel and Ella's pages have been added to the Other Kids page - and it is our hope that a cure is found before another child's life is taken.
All of these children show a strength and grace that is so often not visible in adults and we can learn so much from them: the joy of living each day as it comes, comfort in the knowledge that they are loved & a peace that comes from being so close to their God.
I remain convinced that they know the voice of God and receive His assurances constantly in their hearts. I have read of dipg kids who see His angels and I am comforted in this knowledge. The differences in each family's faith (religion) matter not as it is the Faith that each family gives their children that sustains them all.
02 April 2009
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