20 February 2009

Lifted Up - Ian & Ellie

Yesterday was a bad day for the DIPG family. Two of its members, Ian Henderson & Ellie Willaert left their Earthly bodies and have gone Home.

Ian was diagnosed little more than 8 months ago; Ellie about 9 months ago. Both of these precious children as well as Cal Daniel lived in Minnesota.

I know the doctors say that there are no known environmental links, but sometimes you just have to say "Hmmmmm".

Wednesday's website update found me trying to catch up on some of the Other Kids; Fabian, Andrea, Kira, Erica, Brian, Noah, Luke, Jesse, Kelly-Anne and Ben were all added. If you stop by you'll notice that a couple of the pages aren't in English; that's because DIPG isn't an English-speaking disease. Children from all over the world are diagnosed with it and they (generally) each receive the same prognosis - 6 - 12 months. For a 4 year old that next year is 20% of his life. He might make it to Kindergarten. She may not be alive for her first dance recital.

Awareness is the only weapon most of us have against this disease. A disease that robs our children of their right to a future. A future that should include Kindergarten, recess, Christmas.

If you wander by this page please stop by www.icouldbeyourchild.org Get to know the kids whose future has been jepordized by something that noone understands.

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